STRATHAM - Behaylu Barry's fate lies in a FedEx box on its way from a remote African village to the Massachusetts Red Cross.
A
native Ethiopian, 12-year-old Behaylu and his adoptive family in
Stratham are hoping for a miracle after he was diagnosed with severe
aplastic anemia three weeks ago.
Behaylu
needs a life-saving bone marrow transplant, and he's counting on one of
his five siblings back in Ethiopia to be a match. "That would be cool,"
Behaylu said of the possibility of finding a donor within his birth
family and seeing one of the siblings he left behind when he was adopted
by Aidan and Midori Barry in 2007 at age 6.
Behaylu's
three Ethiopian brothers and two sisters provided saliva samples last
Friday. The DNA from the samples will be analyzed and hopefully result
in a match for Behaylu, a rising star on the soccer field who's been
sidelined by a disease in which the bone marrow fails to produce enough
blood cells.
The
disease is rare, affecting an estimated 600 to 900 people in the United
States each year, according to the Aplastic Anemia and MDS International
Foundation.
The diagnosis came just after Behaylu, an avid
soccer player, who turns 13 on March 28, was selected for an elite team
at Seacoast United Soccer Club in Hampton. Symptoms began last month
with nose bleeds, chest pain and difficulty breathing. Hospitalized at
Boston Children's Hospital after his diagnosis, Behaylu is now back home
and is receiving weekly blood transfusions.
"Hopefully,
we'll know in a couple of weeks if we have a match," Aidan said.While
the recovery from a bone marrow transplant could take six months to a
year, it's the only hope for a cure, he said. Doctors have told the
Barrys that there's a 25 percent chance that a sibling will be a match.
Behaylu has returned to classes at Cooperative Middle School in Stratham, but he's had to limit his activity.
"Gym class is kind of hard," he said.
The
Barrys have already contacted a doctor in Ethiopia who has agreed to
help with passports, exit visas and other steps that may need to be
taken to bring a sibling to the United States.
"I'm just really appreciative of what everybody is doing," said Midori, his adoptive mother.
The
Barrys have provided a loving home for the young boy, the middle child
in an African family that relinquished him because of brutal poverty and
hunger.Four years ago, after Behaylu expressed concern about their
well-being, the Barrys set out on a mission to find his birth family. It
took about two years. In 2012, the Barrys traveled to Ethiopia. Behaylu
was greeted with a hero's welcome when he arrived in the village and
met up with his family.
"It really comforted a lot of his lonely feelings," Aidan said.
The
Barrys now help Behaylu's siblings by providing the resources they need
to attend private school and have proper clothing and health care.
Meanwhile,
the Stratham-based Annie's Angels Memorial Fund has stepped forward to
help. Bill Dagiau, founder and president, said the organization is
planning events that include a school dance, birthday party and comedy
night. They're also planning a fundraiser at Seacoast United Soccer Club
and a blood drive and bone marrow donor registration.
For more information, visit
www.anniesangels.net
or the organization's Facebook page, Annie's Angels Memorial Fund.
Donations to the "Spirit of Behaylu" can also be made on the website.
jschreiber@newstote.com